Well, due to many various commitments my blogging has certainly slowed down during the past six months. There has been so much going on and in so many different directions that life has been in a bit of a permanent spin to put it mildly.
In May of this year Mollie finally began her placement at a small independent alternative provision. This is reflective in her EHCP as ‘Education Otherwise than in School’ and is funded via a personal budget in order to facilitate maximum flexibility. Therefore, the provision that she attends, the hours and the possibility of various other avenues of education remains within mine and therefore Mollie’s control. Her finalised EHCP is fully reflective of PDA strategies, which is vitally important for any child with PDA, and is finally tuned for her individual personality and presentation. This has taken a long time and a lot of battling to achieve but we are finally there.
Following a positive start, which many of you will recognise as ‘the honeymoon period’ we then entered more troubled waters and a period of regression. I have to admit that given the detailed content of her EHCP and the quality of her provision, this was like being hit between the eyes with one of those curve balls that life seems to derive pleasure from throwing at us. What the hell do I do now was my initial reaction and where do we go from here? The answer was to accept that life is never going to be a straightforward path, take a deep breath, remember that set backs if dealt with appropriately may not be permanent and to take stock of what the issues may be and how to move forward.
So this is what we have done and thankfully it has been made all the more easier with a fully understanding and co-operative provision. The provision that she currently has is excellent and so now it simply needs fine tuning in order to smooth out any tiny bumps that may be affecting Mollie’s anxieties and ability to attend.
Due to Mollie’s maturing years, can you believe that she is now thirteen years old, she now requires a degree of privacy re her personal life and so the finer details of these difficulties are something that will remain private. The good news is that we are still moving forward in a positive direction, the lesson of the tale is to remember that no matter how good things may seem, always be prepared for the set backs. Don’t go into panic mode, as I did, but simply reflect, formulate a plan, be pro-active and start again. Progression for a child with PDA may never be a smooth curve that continues to climb in the correct direction. It most closely resembles the ups and downs of a roller coaster ride but hopefully, with the correct approach, the peaks and troughs should continue to keep moving steadily in the correct direction.
If a child’s cognitive profile is spiky, as many on the ASD spectrum are, then it stands to reason that life in general is perhaps going to be spiky profile and not that of a continual smooth flowing line. Enjoy the highs and go back to PDA basics during the lows with a view to slowly build back up again.
Due to Mollie now requiring and fully deserving privacy I will no longer be blogging about her in detail. I will keep you all up to date with general information but the majority of this blog will perhaps now become more focused on PDA in general rather than specifically about charting my journey with Mollie. I would like to thank Mollie for generously allowing me to share her story during her early years and both Mollie and I hope that it has helped many of you to navigate your own journey with a little bit more ease.
I would also like to thank the many followers and readers of my blog for sharing my journey with me, your wonderful comments and your continued support. As much as this blog has perhaps helped others along the way it has also been a constant source of support for me. A way to express my innermost feelings, fears and, at times, despair; where I would always receive the most wonderful support and comradeship from so many fellow parents. So a very big thank you from me to you.
Don’t forget that there is an abundance of information on my sister blog PDA Guidance which offers advice on navigating the diagnostic path, education, life at home and also attempts to collate all of the most useful resources from across the net in one handy place. For the purposes of the posts on PDA Guidance being used to share with professionals I have attempted to make this specific blog as professional and informative as possible. Much of the information on there is linked back to professionals and reputable sources. For those of you who wish to keep up to date with discussions and information about PDA it may be a good idea to press the follow button on my sister blog because this may be where the majority of my future ramblings are posted.
New Parent Written Blog
Finally, I would like to share with you a new parent written blog that has recently being brought to my attention. It is written by a parent who is aiming to spread awareness of PDA in her adopted home of New Zealand. Parent power can be a huge driving force in pushing for change and so if you are living in the Southern Hemisphere then please do pop over for a visit to this blog and show your support by following the link provided here lovepda